Willingness To Participate In Biomedical Research Among Adult Population In Bishnupur District, Manipur: A Cross-Sectional Study.
DOI:
https://doi.org/10.37506/b02wbx25Keywords:
Willingness, biomedical research, Bishnupur districtAbstract
Context: There are limited data in India, even more so in Manipur when it comes to assessing willingness to participate in biomedical research despite numerous ongoing research being conducted. This study will throw light on the willingness of the general population who we oftentimes ask to participate in biomedical research.
Aim: To assess the willingness to participate in biomedical research among the adult population of Bishnupur district, Manipur.
Settings and Design: A cross-sectional study was conducted among adults in Bishnupur district, Manipur during March 2023.
Methods and Material: Participants were selected using multistage random sampling with proportional allocation. Data were collected by interviewing the participants using pretested structured questionnaire.
Statistical analysis used: Descriptive statistics like mean with standard deviation and percentage were used. Chi-square test, Fisher Exact test and logistic regression were employed.
Results: There were 448 participants with mean age 42.71±13.74 years. Ninety-two percent previously participated in any form of biomedical research. Participants willing to participate in any biomedical research was 76.1%. Majority of respondents were willing to undergo physical examinations. Risk issue was the main reason for those not willing to participate. Those who had previous history of participation were ten times more likely to participate than those who had no previous participation in biomedical research.
Conclusions: The study showed that three-fourth of the general adult population in Bishnupur were willing to participate in any biomedical research.
References
Scott A. Why We Need Biomedical Research. wordpress.org. WordPress [2021 Jan 2] - . Improving the biomedical research. 2021 Jan 6; [about 2 screens]. Available from: http://www.nhinbre.org/improving-the-biomedical-research/
Farha RA, Alzoubi KH, Khabour OF, Mukattash TL. Factors influencing public knowledge and willingness to participate in biomedical research in Jordan: A national survey. Patient preference and adherence. 2020 Aug 5:1373-9.
Köngeter A, Schickhardt C, Jungkunz M, Bergbold S, Mehlis K, Winkler EC. Patients' Willingness to Provide Their Clinical Data for Research Purposes and Acceptance of Different Consent Models: Findings From a Representative Survey of Patients With Cancer. J Med Internet Res. 2022 Aug 25;24(8):e37665.
Chapagain RH, Adhikari S, Giri BR, Ray P, Shrestha NJ, Prajapati B et al. Factors affecting willingness to participate in vaccine clinical trials in an underdeveloped country: perspective from Nepal. Hum Vaccin Immunother. 2022 Nov 30;18(5):2051413.
Cornejo-Torres Y, Boniface E, Lopez E, Gomez-Arboleda K, Darney BG. Willingness to Participate in Health Research: Mexican and Mexican American Women's Perspectives. Women's health rep. 2022 Sep 1;3(1):785-94.
Brall C, Berlin C, Zwahlen M, Ormond KE, Egger M, Vayena E. Public willingness to participate in personalized health research and biobanking: A large-scale Swiss survey. PLoS One. 2021 Apr 1;16(4):e0249141.
Algabbani A, Alqahtani A, BinDhim N. Willingness and determinants of participation in public health research: a cross-sectional study in Saudi Arabia. East Mediterr Health J. 2021 Jan 23;27(1):59-66.
Bailey JC, Crawford DC, Goldenberg A, Slaven A, Pencak J, Schachere M et al. Willingness to Participate in a National Precision Medicine Cohort: Attitudes of Chronic Kidney Disease Patients at a Cleveland Public Hospital. J Pers Med. 2018 Jun 26;8(3):21.
Scanlon JK, Wofford L, Fair A, Philippi D. Predictors of Participation in Clinical Research. Nurs Res. 2021 Jul-Aug 01;70(4):289-297.
Gayet-Ageron A, Rudaz S, Perneger T. Study design factors influencing patients’ willingness to participate in clinical research: a randomised vignette-based study. BMC Medical Res. Methodol. 2020 Dec;20:1-8.
Milani SA, Swain M, Otufowora A, Cottler LB, Striley CW. Willingness to participate in health research among community-dwelling middle-aged and older adults: does race/ethnicity matter?. J Racial Ethn Health Disparities. Jun;8:773-82.
Bouida W, Grissa MH, Zorgati A, Beltaief K, Boubaker H, Sriha A et al. Willingness to participate in health research: Tunisian survey. BMC medical ethics. 2016 Dec;17:1-5.
Sellars B, Garza MA, Fryer CS, Thomas SB. Utilization of health care services and willingness to participate in future medical research: The role of race and social support. J Natl Med Assoc. 2010 Sep 1;102(9):776-86.
Teschke K, Marino S, Chu R, Tsui JK, Harris MA, Marion SA. Public opinions about participating in health research. Can. J. Public Health. 2010 Mar;101:159-64.
Katz RV, Green BL, Kressin NR, Claudio C, Wang MQ, Russell SL. Willingness of minorities to participate in biomedical studies: confirmatory findings from a follow-up study using the Tuskegee Legacy Project Questionnaire. J Natl Med Assoc. 2007 Sep;99(9):1052-60.
Downloads
Published
Issue
Section
License
Copyright (c) 2024 Naorem Rishikanta Singh, Isaac Lalrawngbawla, Vijaya Elangbam, Shantibala Konjengbam, Hanjabam Sanayaima Devi
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.
https://creativecommons.org/licenses/by-nc/2.0/deed.en