Bias, stigma and Empowerment among girl childhood cancer patients and Survivors: A survivor-led study

Authors

  • Poonam Bagai Founder Chairman of CanKids KidsCan, New Delhi.
  • Ritu Bhalla CanKids, New Delhi, India, MBA Candidate,Vedica Scholars Programme for Women. 
  • Sitara Khan KCK Chapter Head Delhi, Senior Executive-IT, MASSI, Cankids, New Delhi
  • Jennifer Lowe Fulbright Scholar, General Manager, Quality Care, Research and Impact, CanKids, New Delhi, India.
  • Ankit Taluja Green belt in lean six sigma, PGDEpi, Deputy General Manager, MASSI, CanKids
  • Vatsna Rathore Research and Development CanKids, New Delhi,
  • Swesha Chhabra M Pharm, Research Fellow – Clinical Project Development, Medanta Institute of Education and Research (MIER), Gurgaon, Haryana

DOI:

https://doi.org/10.37506/5bc1bj82

Keywords:

girl child cancer survivors, social support, childhood cancer, gender disparities, peer support, stigma, survivorship

Abstract

Background- Childhood cancers cause significant morbidity and mortality, with notable gender disparities in access to healthcare. The Girl Child Project Initiative by CanKids addresses these inequities by offering holistic care and empowerment for young female cancer survivors. Through peer support and community engagement, the initiative targets medical, educational, and social needs aiming to reduce barriers and promote self-advocacy.

Methods- The study included 82 female childhood cancer survivors from six major Indian cities- Delhi, Mumbai, Ahmedabad, Lucknow, Kolkata, and Chennai, all registered with CanKids. A team of cancer survivors developed a five-point Likert scale questionnaire covering challenges/barriers, stigma during treatment, stigma as cancer survivors and facilitators of survivorship.

Conclusion- Social support and counselling from fellow survivors were highly valued by the participants. This support improved both health outcomes and quality of life for the survivors. The findings of the study suggest that developing countries can leverage survivors to manage and mitigate cancer-related stigma.

 

Author Biographies

  • Poonam Bagai, Founder Chairman of CanKids KidsCan, New Delhi.

    BA Hons. Economics, A Class I Government of India Officer (1984 Batch) Founder Chairman of CanKids KidsCan, New Delhi.

  • Ritu Bhalla, CanKids, New Delhi, India, MBA Candidate,Vedica Scholars Programme for Women. 

    BCom, KCK Girl Child Project Lead, CanKids, New Delhi, India, MBA Candidate,Vedica Scholars Programme for Women. 

  • Sitara Khan, KCK Chapter Head Delhi, Senior Executive-IT, MASSI, Cankids, New Delhi

    B.com, KCK Chapter Head Delhi, Senior Executive-IT, MASSI, Cankids, New Delhi

  • Jennifer Lowe, Fulbright Scholar, General Manager, Quality Care, Research and Impact, CanKids, New Delhi, India.

     BA Hons, Fulbright Scholar, General Manager, Quality Care, Research and Impact, CanKids, New Delhi, India.

  • Ankit Taluja, Green belt in lean six sigma, PGDEpi, Deputy General Manager, MASSI, CanKids

    PDGDS, MBA, Green belt in lean six sigma, PGDEpi, Deputy General Manager, MASSI, CanKids, 

  • Vatsna Rathore, Research and Development CanKids, New Delhi,

    BDS, MPH, Consultant-Research and Development CanKids, New Delhi,

  • Swesha Chhabra, M Pharm, Research Fellow – Clinical Project Development, Medanta Institute of Education and Research (MIER), Gurgaon, Haryana

    M Pharm, Research Fellow – Clinical Project Development, Medanta Institute of Education and Research (MIER), Gurgaon, Haryana

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Published

2025-03-11

How to Cite

Bias, stigma and Empowerment among girl childhood cancer patients and Survivors: A survivor-led study. (2025). Indian Journal of Public Health Research & Development, 16(2), 216-222. https://doi.org/10.37506/5bc1bj82